To start hi to all my followers and friends who keep up to date with this. We thank you for following. Well since our last post we were off to see the surgeons. And I think we had mentioned that Jake had been to the toliet with dihearrea and he has the prolapse again. Well it wasnt dihearrea at all it what they call fecal overflow. And jake has it bad, and the smell is horrid, it smells like sewage back up. So Jake hasnt actually now been to the toliet for 26 days. The surgeon that we saw as an emergency just dismissed us, he had'nt even read Jakes file, he was uncertain why we were there, and dismissed us saying will see him in 8 week see how he goes, and then told us to explain to Jake the it will happen again its just one of them things. Well as you can understand I wasnt impressed not at all, We were treated like rubbish, after all we had been told while is was in hospital about it being rare to happen to children and that it would need correcting if it happened again, then to see this person to be told yeah it will need seeing to but hey leave him 8 week see how he goes, it made my blood boil. So we went to see Jakes doctors who were great and very understanding about it all. They examined Jake and said they could feel the blockage, and they really needed him to go to toliet before anything else could be done. So they increased his laxativs again to help him get the flow going. But Have advised us that if by wednesday he hasnt gone then they will have to do something, but because Jakes not in pain or vomitting from it yet we have time to play with to get him to move his motins himself. So thats that for now, As for his bloood count he is still maintaining so the meds are working well for now so that is good. They have reduced his dose again we are now down to 5mg aday of predisolone, and his weight is coming down quickly. just fingers crossed he keeps maintaining. So this time its good mixed with the bad Im afraid to say. Jake was rushed back in to hospital on saturday evening as he couldnt cope with the pain any longer, they say the blockage is causing the pain, so they told us to keep on top of giving him pain relief, and to double his dose of laxativs everyday. To help him. They said for us to stay in and he can be monitored, but we were also told we could take him home, so home we came, he is more comfty at home and may even go to the toliet. So today Jake is on 9 laxativ's 8 yesturday and 6 the day before and that isnt even including the other laxativs they gave him last week which he takes 10 mls of too. And still no toliet action. Tomorrow we are back at hospital so who knows what will happen. But I hate having to listern to my baby cry from the pain, the terror in his face as he knows what may happen. I wish I could have it all for him., He should be in school making friends and doing the same as everyone else. But he is not and the bestest friend he has his big brother who, throughout all this has been strong and grown up, and a wounderful brother to Jake. Me and his dad are the proudest parents in the world to have such a caring and thoughtful young man as our son. Who maybe sometimes seems overlooked because he has been so grown up about all of this, he is my saviour, And I feel so lucky to have my boys and wouldnt change them for the world. Times like this show you the true colours of people and family that will always be there. Not only for me and my husband but for our eldest son too. Because these people are the ones that laugh at you when you fall over, but are the first to hold their hand out to help you up. And there isnt enough ways to say thank you. You keep us strong and you help make everything bareable. You hold our heads up when we cant. Our whole world had been turned upside down, and yet your still standing there with us. So I thank you again for truely being you. xx
In the words of Jakey Bee Happy
will update when we can. xx Thank you all for support.
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